Category Archives: Prescription Drugs

Rilutek – Riluzole Evaluation

Rilutek - Riluzole

Although I had been offered Riluzole/Rilutek at an earlier date, I was not convinced to start taking it since I had no definitive diagnosis of ALS. In addition, although this medication is purported to add an additional 3 months life expectancy to some pALS, many report no benefit and significant side effects, particularly elevated liver enzymes. The latter is something that has been an ongoing issue for me for many years.

However, since being diagnosed with PMA a few days ago, I decided that I would start taking it and closely monitor my liver stats.

You evaluated Riluzole

Feb 26, 2018
  • Started: Feb 22, 2018
  • Dosage: 50 mg Twice daily
  • Effectiveness: Can’t tell (for progressive muscular atrophy)
  • Side effects: None
  • Adherence:  Always
  • Burden: A little hard to take
  • Cost< $25 monthly
  • Advice & Tips: Best to set a timer since it is supposed to be 1 hour before or two hours after a meal.

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Rabeprazole – a Proton Pump Inhibitor for Acid Reflux

Rabeprazole,  also known as Pariet, is a PPI (Proton Pump Inhibitor) that is designed to reduce stomach acid production. It is generally considered relatively safe with few side-effects for the majority of patients. You can get a full review of the risk-benefit spectrum of Rabeprazole – Pariet  here

You evaluated Rabeprazole

Feb 28 2018
  • StartedNov 26, 2017
  • Dosage20 mg Daily
  • Effectiveness Major (for acid reflux)
  • Side effects None
  • Adherence Sometimes
  • Burden Not at all hard to take
  • Cost< $25 monthly
  • Advice & Tips: I have been on this for a few years now and only needed to take it for a couple of days for it to work. Now with all the supplements I take, acid reflux is more of a problem and I am taking this regularly. When I stop for more than a couple of days the problem resurfaces.

You can check out other treatments for PMA