Tag Archives: Patients Like Me

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An ODE to PLM

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An Ode to PLM

I have been a member on PLM (PatientsLikeMe) now for over 15 months and it has been a great help in getting me out of the doldrums whenever I feel myself start to sink into negative thoughts. I have made friends and gained a lot of helpful information as well as a new perspective Hence this Ode to PLM.
I thought that the following might help others find some solace when things get bad:

So you’ve been diagnosed and just joined our group,
MND, ALS, PLS, PMA it’s all just a bunch of alphabet soup

PLM is the place where you’ll find lots of friends
All in the same boat, all with the same ends

It’s not a death sentence as much as they say,
Your attitude can lessen the price that you pay!

Can’t promise you’ll get better but you won’t be alone
Now you’ve found your way here, you’ve a home of your own!

So make it your decision: be up and not down
For in spite of this sickness, beauty abounds! 🖖

You can join us on PLM Here

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I just joined PLM

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Today, I joined Patients Like Me

I do not remember whether I just came across the site by accident or someone recommended it to me. Whatever the case, this site offers more information and support than any other source. Below is the message that I left for fellow members:

Interests: Advocacy and Working with my Condition

I have spent the last year trying to get a definitive diagnosis for my progressive muscle weakness and finally have an answer that makes sense (even though it sucks!).

From here on in, my only goal is to do everything that I can to maintain a reasonable quality of life and to extend it as much as I can. In so doing, perhaps I can benefit others as we make this journey together.

Patients Like Me is a large and active community of Patients and their caregivers where they can exchange information and give mutual support. The ALS/MND section has thousands of members although there are relatively few with PMA (Progressive Muscular Atrophy). In any event, much of the information on any variant of Motor Neuron Disease will likely apply to PMA.